June . 20 . 2009
destin . florida
why . peutz-jeghers syndrome support group
when . june . 20 . 2009
location . destin community center
goal . to meet and mingle with fellow pjs folks
speaker . in the process of finding a great one
snacks . to be determined
activities . game room with pool . foosball . ping pong
slideshow . photos of folks with pjs and their families
lodging . discounted rates will be researched
info . more information to come
email . pjsconferenceideas@yahoo.com
register . the ezeventplanner site i set up for you to register at is now charging . please send an email to pjsconferenceideas@yahoo.com to register
About Me
Yes and Maybe - as of 00.00.10
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Want to share your Frequent Flyer Miles?
If you would like to share your frequent flyer miles with someone please send an email to pjsmeetandgreet@yahoo.com. I know some great people who could use them to help get them to the PJS Meet and Greet. If you have any questions please feel free to email me. Thanks! ~Casey
How many hours do you think the Meet and Greet should last?
Would you like to have a "Question and Answer Session" with a genetic specialist who manages patients with PJS?
Airports & Airlines
Misc Links
Destin Florida - 06.20.09 - 1st PJS Meet and Greet
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