Wednesday, March 4, 2009

2009 - Question and Answer Session

Schedule an appointment with two genetic specialists who manage patients with Peutz Jeghers Syndrome

Douglas Riegert-Johnson, MD
Gastroenterologist and Certified Medical Geneticist
Mayo Clinic Florida

AND

Lauren Spurck, MS
Genetic Counselor
Mayo Clinic Florida

PURPOSE: To address any questions regarding the medical or hereditary implications of PJS at no cost to the patient

WHEN: June 20, 2009

WHERE: PJS 2009 Meet and Greet at Destin Community Center in Destin, Florida

**Interested parties can call genetic counselor, Lauren W. Spurck, at (904) 953-6286. She is available 8am-5pm, Monday-Friday to answer questions regarding our services or assist patients in scheduling an appointment.

Monday, March 2, 2009

2009 - Lodging Detailed Information

Distance information taken from www.randmcnally.com with the Destin Community Center as the starting address. 101 Stahlman Ave, Destin, FL 32541

Courtyard Sandestin at Grand Boulevard

100 Grand Boulevard, Destin, FL 32550
(850) 650-7411 (850) 650-7491 - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 miles


Residence Inn Sandestin
300 Grand Boulevard, Destin, FL 32550
(850) 650-7811‎ (850) 650-7816‎ - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 mil


Destin Pointe
480 Gulf Shore Dr, Destin, FL 32541
(850) 650-0911‎ (800) 624-6017‎
destinpointe.com
EST. DRIVE TIME: 22 minutes EST. DISTANCE: 3 miles

Tuesday, February 17, 2009

2009 PJS Meet & Greet

June . 20 . 2009

destin . florida

why . peutz-jeghers syndrome support group

when . june . 20 . 2009

location . destin community center

goal . to meet and mingle with fellow pjs folks

speaker . in the process of finding a great one

snacks . to be determined

activities . game room with pool . foosball . ping pong

slideshow . photos of folks with pjs and their families

lodging . discounted rates will be researched

info . more information to come

email . pjsconferenceideas@yahoo.com

register . the ezeventplanner site i set up for you to register at is now charging . please send an email to pjsconferenceideas@yahoo.com to register