2011 PJS Meet and Greet
Location, Date and Time are to be determined.
Tuesday, November 2, 2010
Friday, March 19, 2010
2010 PJS Meet and Greet Information
June 26, 2010 - Saturday
2:00 pm - ???
Dr. Riegert-Johnson and his assistant from the Mayo Clinic in Florida will be joining us again this year. They are planning a short presentation for us.
Reservations have been made for our group at:
The Best Western Garden Inn
1500 Santa Rosa Avenue
Santa Rosa, CA 95404
Telephone: 707-546-4031
Contact person: Donna Renteria
We are under the name "PJS Group" I verified that all personal information is to be kept confidential.
I reserved 10 rooms for 2 nights-June 25 and June 26.
3 king size single rooms - $122 a night
2 queen size single rooms - $117.00 a night
5 double rooms - $122 a night
Please make your reservation 30 days in advance as all rooms we do not confirm will be put back to the general public to reserve.
When you call to make your reservation you can choose one night or two.
Please let them know at the time of the reservation if you need a pet or smoking room. For dogs there is a $15 charge for each dog.
You can cancel anytime up until 4:00 the day of arrival.
If you have any other questions please email Casey at pjsmeetandgreet@yahoo.com.
Hope to see you there!
June 26, 2010 - Saturday
2:00 pm - ???
Dr. Riegert-Johnson and his assistant from the Mayo Clinic in Florida will be joining us again this year. They are planning a short presentation for us.
Reservations have been made for our group at:
The Best Western Garden Inn
1500 Santa Rosa Avenue
Santa Rosa, CA 95404
Telephone: 707-546-4031
Contact person: Donna Renteria
We are under the name "PJS Group" I verified that all personal information is to be kept confidential.
I reserved 10 rooms for 2 nights-June 25 and June 26.
3 king size single rooms - $122 a night
2 queen size single rooms - $117.00 a night
5 double rooms - $122 a night
Please make your reservation 30 days in advance as all rooms we do not confirm will be put back to the general public to reserve.
When you call to make your reservation you can choose one night or two.
Please let them know at the time of the reservation if you need a pet or smoking room. For dogs there is a $15 charge for each dog.
You can cancel anytime up until 4:00 the day of arrival.
If you have any other questions please email Casey at pjsmeetandgreet@yahoo.com.
Hope to see you there!
Monday, January 25, 2010
2010 PJS Meet and Greet
June . 26 . 2010
north california / san francisco bay area . california
why . support group for those with peutz-jeghers syndrome and juvenile polyposis
when . saturday . june . 26 . 2010
location . tbd
goal . to meet and mingle with fellow pjs folks
speaker . in the process of finding a great one
snacks . to be determined
activities . tbd
lodging . discounted rates will be researched
info . more information to come
email . pjsmeetandgreet@yahoo.com
north california / san francisco bay area . california
why . support group for those with peutz-jeghers syndrome and juvenile polyposis
when . saturday . june . 26 . 2010
location . tbd
goal . to meet and mingle with fellow pjs folks
speaker . in the process of finding a great one
snacks . to be determined
activities . tbd
lodging . discounted rates will be researched
info . more information to come
email . pjsmeetandgreet@yahoo.com
Wednesday, March 4, 2009
2009 - Question and Answer Session
Schedule an appointment with two genetic specialists who manage patients with Peutz Jeghers Syndrome
Douglas Riegert-Johnson, MD
Gastroenterologist and Certified Medical Geneticist
Mayo Clinic Florida
AND
Lauren Spurck, MS
Genetic Counselor
Mayo Clinic Florida
PURPOSE: To address any questions regarding the medical or hereditary implications of PJS at no cost to the patient
WHEN: June 20, 2009
WHERE: PJS 2009 Meet and Greet at Destin Community Center in Destin, Florida
**Interested parties can call genetic counselor, Lauren W. Spurck, at (904) 953-6286. She is available 8am-5pm, Monday-Friday to answer questions regarding our services or assist patients in scheduling an appointment.
Douglas Riegert-Johnson, MD
Gastroenterologist and Certified Medical Geneticist
Mayo Clinic Florida
AND
Lauren Spurck, MS
Genetic Counselor
Mayo Clinic Florida
PURPOSE: To address any questions regarding the medical or hereditary implications of PJS at no cost to the patient
WHEN: June 20, 2009
WHERE: PJS 2009 Meet and Greet at Destin Community Center in Destin, Florida
**Interested parties can call genetic counselor, Lauren W. Spurck, at (904) 953-6286. She is available 8am-5pm, Monday-Friday to answer questions regarding our services or assist patients in scheduling an appointment.
Monday, March 2, 2009
2009 - Lodging Detailed Information
Distance information taken from www.randmcnally.com with the Destin Community Center as the starting address. 101 Stahlman Ave, Destin, FL 32541
Courtyard Sandestin at Grand Boulevard
(850) 650-7411 (850) 650-7491 - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 miles
Residence Inn Sandestin
300 Grand Boulevard, Destin, FL 32550
(850) 650-7811 (850) 650-7816 - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 mil
Destin Pointe
480 Gulf Shore Dr, Destin, FL 32541
(850) 650-0911 (800) 624-6017
destinpointe.com
EST. DRIVE TIME: 22 minutes EST. DISTANCE: 3 miles
Courtyard Sandestin at Grand Boulevard
100 Grand Boulevard, Destin, FL 32550
marriott.com
Residence Inn Sandestin
300 Grand Boulevard, Destin, FL 32550
(850) 650-7811 (850) 650-7816 - Fax
marriott.com
EST. DRIVE TIME: 20 minutes EST. DISTANCE: 12 mil
Destin Pointe
480 Gulf Shore Dr, Destin, FL 32541
(850) 650-0911 (800) 624-6017
destinpointe.com
EST. DRIVE TIME: 22 minutes EST. DISTANCE: 3 miles
Tuesday, February 17, 2009
2009 PJS Meet & Greet
June . 20 . 2009
destin . florida
why . peutz-jeghers syndrome support group
when . june . 20 . 2009
location . destin community center
goal . to meet and mingle with fellow pjs folks
speaker . in the process of finding a great one
snacks . to be determined
activities . game room with pool . foosball . ping pong
slideshow . photos of folks with pjs and their families
lodging . discounted rates will be researched
info . more information to come
email . pjsconferenceideas@yahoo.com
register . the ezeventplanner site i set up for you to register at is now charging . please send an email to pjsconferenceideas@yahoo.com to register
destin . florida
why . peutz-jeghers syndrome support group
when . june . 20 . 2009
location . destin community center
goal . to meet and mingle with fellow pjs folks
speaker . in the process of finding a great one
snacks . to be determined
activities . game room with pool . foosball . ping pong
slideshow . photos of folks with pjs and their families
lodging . discounted rates will be researched
info . more information to come
email . pjsconferenceideas@yahoo.com
register . the ezeventplanner site i set up for you to register at is now charging . please send an email to pjsconferenceideas@yahoo.com to register
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